Significant numbers of children in the UK are suffering from preventable levels of disability, particularly blindness, and premature death because of poor diagnosis of brain tumours.
A new study by scientists at The University of Nottingham’s Children’s Brain Tumour Research Centre, funded by the Samantha Dickson Brain Tumour Trust, shows that prolonged and slow diagnosis can make long term survivors of childhood brain tumours up to 10 times more likely to suffer disability. 450 children in the UK are diagnosed with a brain tumour every year. The average time between the onset of symptoms and diagnosis in children in the UK is between two and three months, that’s up to three times longer than the rest of Europe and the USA.
David Walker, Professor of Paediatric Oncology at the Children’s Brain Tumour Research Centre, University of Nottingham, said: "Our study showed that the UK health system is the slowest system for making this diagnosis compared to reports from other countries. It takes more than 13 weeks in the UK to make this diagnosis for half of the patients, whilst in the US and Poland this is achieved within 5 weeks. The research also showed that symptoms increased in number and that disability increased in severity as time passed before diagnosis. This indicates that delays in diagnosis are affecting the severity of disability for the children and young people, which can have life-long consequences. "